Chronic Pain Disorder (A to Z)

According to American Chronic Pain Association, the following are chronic pain conditions:-

Advanced Prostate Cancer
AIDS-Related Pain
Ankylosing Spondylitis
Ataxic Cerebral Palsy
Autoimmune Atrophic Gastritis
Avascular Necrosis
Back Pain
Breakthrough Pain
Burning Mouth Syndrome
Cancer Pain
Carpal Tunnel
Cauda Equina Syndrome
Central Pain Syndrome
Cerebral Palsy
Cerebrospinal Fluid (CSF) Leaks
Cervical Stenosis
Charcot-Marie-Tooth (CMT) Disease
Chronic Fatigue Syndrome (CFS)
Chronic Functional Abdominal Pain (CFAP)
Chronic Pancreatitis
Collapsed Lung (Pneumothorax)
Complex Regional Pain Syndrome (RSD)
Corneal Neuropathic Pain
Crohn’s Disease
Degenerative Disc Disease
Dependence (Physical)
Dercum’s Disease
Diabetic Peripheral Neuropathy (DPN)
Ehlers-Danlos Syndrome (EDS)
Failed Back Surgery Syndrome (FBSS)
Growing Pains
Herniated disc
Intercostal Neuraligia
Interstitial Cystitis
Irritable Bowel syndrome (IBS)
Juvenile Dermatositis
Knee Injury
Leg Pain
Loin Pain-Haematuria Syndrome
Lyme Disease
Medullary Sponge Kidney (MSK)
Meralgia Paresthetica
Mitochondrial Disorders
Multiple Sclerosis
Musculoskeletal pain
Myofascial Pain
Neck Pain
Neuropathic Pain
Occipital Neuralgia
Paget’s Disease
Patient Rights
Pelvic Pain
Peripheral Neuropathy
Phantom Limb Pain
Pinched Nerve
Polycystic Kidney Disease
Polymyalgia Rhuematica
Post Herniorraphy Pain Syndrome
Post Mastectomy Pain Syndrome
Post Stroke Pain
Post Thorocotomy Pain Syndrome
Postherpetic Neuralgia (Shingles)
Post-Polio Syndrome
Post-Traumatic Stress Disorder (PTSD)
Primary Lateral Sclerosis
Psoriatic Arthritis
Pudendal Neuralgia
Raynaud’s Disease
Restless Leg Syndrome
Rheumatoid Arthritis (RA)
Sacroiliac Joint Dysfunction
Scheuemann’s Kyphosis Disease
Shingles (Herpes Zoster)
Sickle Cell
Sjogren’s Syndrome
Sleep apnea
Spasmodic Torticollis
Sphincter of Oddi Dysfunction
Spinal Cerebellum Ataxia (SCA Ataxia)
Spinal Cord Injury
Spinal Stenosis
Tarlov Cysts
Thoracic Outlet Syndrome (TOS)
Transverse Myelitis
Trigeminal Neuralgia
Trigger Points
Ulcerative Colitis
Vascular Pain

Quite shocking. Right!

There are so many chronic pain conditions. Yet, we hardly have any awareness about them.



This is the post excerpt.

People generally talk about humanity.

 Humanity in general means “the quality of being humane” or “Human Beings Collectively”.  

Human Being is said to be gods biggest accomplishment. The most superior living race. Now, who declared we humans the most superior race. We humans ourselves! 

When in reality we all are animals. We still strive for the survival of the fittest. And we fight amongst each other. Fights over the name of religion, cast, creed, etc . You just name it. Add any word before violence, for “e.g. Religious violence” over google. And you will find how humanity is taking shape from the very starting of our civilisation. 

Humanity is actually a complex word as complex as we humans are. After all who invented the word humanity. We the humans. 

You must be thinking what rubbish is she writing. If you had this thought in your mind congratulations it’s a human being who is reading this. But, if for a minute you could feel what I wrote then welcome my brothers and sisters let’s just elope to another planet or let’s make a new city. This world is too populated with “humane” people. 
These days there is another form of violence people suffer. The violence suffered by people who are different. I am talking about the transgender, gay, lesbians (LGBT community). 
So, according to many humane people around they are the corrupt people polluting our world. They are the sick mentality people. They are defected by there brains. These people will burn in hell. Why! Because they broke the gods ordinance. That’s not how God made us. 

Firstly, I want to ask, 
“Have you seen God?”.

“Who is God?” 

“How does God actually look like?”

Well, according to Gita, Quran & Bible(the three holy books).  When the children of God are in need, God comes down in human form. Not the “humane” form. 
I had such an experience. I was on the way to NIMHANS(National Institute of mental health and neurosciences)  to meet the psychologist for my biofeedback appointment. I was with my mother in a cab and suddenly my laryngeal muscles started to spasm. I was not able to breathe or speak. My tongue was going back and I was choking myself. I was scared. Seeing all this happening my mother was scared too. She was begging the cab driver to drive fast and reach the hospital. It was a moment of panic. And the driver did not care much. He was more scared of getting a ticket for driving fast more than a girl dieing in his cab. She kept on insisting and the person kept his ears numb, I guess. Because my mother’s voice was not reaching him, somehow. All he wanted was not to get a speed driving ticket. 

Why would he care. He is a “humane” person. 

I was crying by then and trying to tell my mother with gestures(since I was not able to speak). “It’s okay! I will manage, we will reach the hospital”. When inside I was scared as hell. 

But then something happened. We reached a signal and a transgender (hijada in Hindi) was begging on that signal. It saw the delimna me and my mother were and yelled at the driver in Kannada(local language of Karnataka) to move faster and called for all its other friends(the other transgenders) on the road and they got the signal cleared for us. And that is how I reached the hospital on time. 

For me that transgender was like my saviour before the doctors gave me injections and made me breathe again. 

You can also call this experience of mine as “real humanity” also. Somehow, the person (the transgender) wasn’t an appropriate person according to many humane people around. They have been considered as a disgrace to humans. A byproduct, a defect to humanity but to me, that person was no less than a God. Who got the way cleared for me. I can’t even imagine what would have had happened to me there on that long signal full of traffic had it not been for them. 
That’s it. If I don’t spiritualise it. Then I guess I met “Humanity” in its true form. 
From this story, you might have figured a few things,

  1. I am a female. 
  2. I am suffering from some condition(a chronic pain disorder).
  3. I am alive to write this story (a survivor).
  4. I am an Indian. 

I chose this particular story as my 1st blog post because it has a lot of value in my life. Probably, if I am alive today is because of a real human. I got perspective to my life. I realised I can utilise my pain and misery for something good. My suffering and pain can come in hand to make it better for others. 

This blog will be dedicated towards working upon creating awareness about various rare chronic pain conditions. 

Wish me luck and shower me with blessings so that I can succeed. 

The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?

Where should I start from? I have so many questions lined up. Probably, I am going nuts.
I mentioned PAIN. Its in block letters because it’s excruciating and suffocating. Have you ever experienced a feeling when you just cant breath when your lungs are functioning normally. But, it is just that feeling when you want to grab some more oxygen for a little while. That extra gush of air would work as a miracle, may be.
The hard truth, It doesn’t. Our body is not as we believe it is. It is way messed up than we are emotionally, when we go through a break up. I guess you must be wondering why am I writing all this.
Well, lets just come back to pain.

PAIN /pein/ – “Pain is an unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage.”

It is that annoying feeling you get when you bump your leg, fall down and hurt your elbow, when your stomach hurts, when you get your legs waxed. Lol! I can give you more examples but I am sure you understood what I am talking about. Its a common feeling everybody gets. What is so big about it! It’s a common usual daily thing everybody goes through.
But, my question is what if that annoying feeling which we call PAIN, stays forever. It plans not to leave you. You are constantly in pain. Something like, pain is a part of you like your heart pumping, inhalation and exhalation of air. The constant throbbing or may be a dull ache. Its there you know it, you can feel it but you cant just make it stop.
What will you do in that situation? Run to a doctor? Tell him how you feel. Ask him to fix it. Or probably let the medicines take its course.
Another question, what if those medicines, frequent visit to the doctor, surgical procedures nothing can take your pain away. Pain wins! Pain is the real ruler. Pain is like John Snow. It comes back from death also and will stick till the end. Your life long companion. Your partner/ lover might just leave you but pain won’t.
Too much Pain talk. Isn’t it?

This is how i feel everyday. I have a chronic pain disorder.
There are many chronic pain disorders, some most common ones are arthritis, fibromyalgia, multiple sclerosis, migraine. You can name many more. You would have come across some of them yourself. Some family member or friend or acquaintance suffering from them. Out of all these disorders I have a very rare one, its called the Complex Regional Pain Syndrome (CRPS). Heard of it? I am sure you haven’t and if you have then either you are suffering from it or you have someone known suffering from.
If I have to explain CRPS in lay man terms I would call it a devil in disguise. You are in constant pain, makes your body weak, keeps you tired always and slowly and slowly drains all the happiness out of you.
“What nonsense is this. You sound mad. Don’t act like a baby. You are exaggerating things up. Its there in your head, you are making your mind play such games on you.”
The constant response you get from people (so called friends).

I am still wondering why am I writing all this because people who know me (acquaintances, so called friends) will say that she wants attention.

Bloody, attention seeker!


My friends will say, “we cant feel you but we know you are going through worse. We are there for you and if writing about it makes you happy then just do that.” But the real reason why I want to write about it is? Because the pain is real. Its not in my mind. I am not faking it. Anybody suffering from it will get that. But, the general population won’t. Some might understand, but not everyone around you.
It is a condition as painful as cancer. It sucks your life. Cancer kills in the end ,so, the suffering ends. CRPS is your companion, it doesn’t kill you but makes your life miserable.


The Road less travelled 

The Road Not Taken is a famous poem by Robert Frost and read by all of us in school .

According to the poet, he took the road less travelled which made a lot of difference in his life. He did not follow the path taken by many others and went for his own adventure in life. 

Many a times in our life, we are in a dilemma where we have to choose(make a decision). Sometimes the circumstances are so challenging that we are scared to make a decision. Because our whole life depends on that one decision. 
But, who has seen the future? The time machine is not yet made. Sorry, we cannot see the future. Even if we had the access to see our future and we don’t like it! Can we change it exactly, how we want? Can we plan every decision of our life?

No, We cannot!

Have you watched “The Butterfly Effect“. Evan finds he has the ability to travel back in time to inhabit his former self (that is, his adult mind inhabits his younger body) and to change the present by changing his past behaviors. Having been the victim of several childhood traumas aggravated by stress-induced memory losses, he attempts to set things right for himself and his friends, but there are unintended consequences for all. At the end, he chooses a life where he is paralysed and never meets his girl. Sad!
Sometimes we just have to follow our instincts and have confidence in ourself and just step forward. We might fall a few times, go through tough times. And we might wish to step back. Don’t! Just move forward. We cannot control everything. People make mistakes. Our mistakes and failures, teach us something new. We learn from our failures. They make us strong. So accept them and learn from them. 
There will be new challenges in our life. We can be our own guardian, take a sword in our hand and win over it. Don’t let those new challenges, those tough times make you weak. Just fight back like a warrior. We may not have a control over our past or future. But our present is in our hands. 

Just step forward. Take the road less travelled, if needed. We never know the path we took leads us to our destination sooner.